#HighFunctioningMeans

ischemgeek

Intro: #HighFunctioningMeans – and its siblings, #LowFunctioningMeans and #FunctioningLabelsMean are trending on Twitter right now. For insight into what neurodiverse people really think of functioning labels, I suggest you check those tags out. I participated in the hashtag, and in my usual verbose way, I realized that I’d completely flood it if I posted all that’s in my brain, but I’m perseverating on it so I decided to turn it into a post. 

Content note: There are some offensive views I’ve written about in a first-person sense for reasons of satire. Content note for ableism and abuse. 

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Please smile.

  Everyday is the same. I feel a whole lot like Coldplay when they say “when you try your best, but you don’t succeed”… The yelling. Their words ring in my ears and it never ends. I am encompassed in a feeling of guilt and even more guilt knowing I feel responsible for things I didn’t actually do. I blame myself. I cry. I am quiet. I have given up. I spend my time wondering when it will end and praying to God that it will ever end.

  As the saying goes “what doesn’t kill you makes you stronger”. I know this to be true, but I don’t want to believe it. I just want it to all come to a stop. Silence is welcoming when you come from my home. Praise is heavenly when you’ve grown up as I have. Heavenly, because of its rarity. 

  I have been put down so much that one of my greatest fears is that I will do the same. I question every action and thought fearing I was in the wrong. When I go above and beyond I am treaty extremely poorly. I don’t know what to do. It consumes me. It consumes me, my time, my energy, my (already minimal) self-esteem, and makes me feel like I am drowning.

  I don’t want to drown. I am treading water and still struggling to stay afloat with my head above the water. I feel lost and afraid. I repeat these thoughts in my head. My head which is weighed down not only by physical pain, but the feelings of loneliness, worthlessness, fear, and frustration.

  So, please love. Please smile. Please be encouraging and appreciative when you are angry. Remember that tough love can be too tough. Please don’t forget that you are worth something and deserve better.

I stand quietly

This is amazing and a must read.

Dirty, Naked & Happy

I stand quietly while you do somersaults on the bed as you aren’t being naughty, you are just trying to get your out of sync body under control.

I stand quietly by the toilet door every time you need to go, and come with you around the house, and sometimes even just across the room, because I know you can feel truly frightened when you are not near me.

I stand quietly at the supermarket checkout while everyone stares at you barking like a dog and blowing raspberries on my arms to cope with the buzzing lights.

I stand quietly while you tell the baffled shop owner that you are looking for shoes that feel hard like splintered wood because your skin can’t bear soft things.

I stand quietly when the attendant gives us scornful looks when I ask for the key to the disabled toilet because the hand dryer…

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Bricks

*I wrote this a month or two ago, but had not published it until now*

A brick on your head. A rubber band around your brain. Everything looks like it is covered by a dirty pain of glass. Fear of falling. Fear of getting hurt. Wanting to sleep the day away, but you can’t fall asleep. Foggy and distant. Dumb. Boring. Unable to concentrate. 

Why me? Will this ever end? I just want to crawl into bed and hide from the world. The sun is my new enemy. I can’t do anything. 

These are just a few of the things that daily cross my previously concussed mind in my previously concussed head. Post concussion syndrome is my new label. That is my new label if I allow it to be…

I fight the same battle everyday. The long hard fight against my mind and my body. The fight against my body and the pain isn’t easy. Physical therapy exercises, vision therapy, too many injections, neuro appointments, lots of doctors and medicines are a major part of my life. That happens to be the easy part as tiring as it is.

The fight to be able to do everything I could before, but knowing in the back of my mind I will never be the same is the heaviest of bricks. 

“One day I know I’ll feel strong again…”

Walking home today I remembered how I felt when I walked down that same hill the year before. I used to feel life wasn’t worth living. 

I thought if I were gone things would be better. Life was only worth living to save my little sister, my grandparents, friends, and family from another loss. But that was it. I realized that if I wasn’t here there would be a loss, something missing. It wasn’t as simple as the loss of a person, but the loss of a friend, daughter, sister, niece, mentor. 

Life was worth living and not for others, but for myself. I can be happy and at peace with the knowledge that I have value, and not only to others, but to myself.

“One day I know I’ll feel strong again” – Michael Kinanuka, Home again